The initial grant periods of the HAALSA study were completed in 2013–2022, with the establishment of a community-based cohort of 5,059 men and women ≥40 years of age in the INDEPTH community of Agincourt, South Africa. The response rate to the Wave 1 survey was 86%. A second wave was completed in fall 2019, and a third wave completed in spring 2022, both with a response rate of 94% among living individuals. Also, in 2021 we collected data via a telephone interview on experiences during the COVID-19 pandemic to better understand links between COVID-19 and cognitive function. Read the questions that make up this phone survey, and access the COVID-19 phone module data below.
Trained, local fieldworkers collected survey data electronically using Computer Assisted Personal Interviews (CAPI). Extensive survey and biomarker data were collected to assess:
- Cognition & Dementia
- Cardiometabolic Disease
- HIV & Treatment
- Public Policies & Health
- Multimorbidity
Surveys were conducted in the local language, Shangaan, with instruments translated from English and back-translated to ensure reliability. During the survey, fieldworkers collected anthropometric measures and blood via finger prick for those who consented. Point of care blood tests were done for glucose, hemoglobin and lipids, and dried bloodspots were collected and later tested for HbA1c, CRP, HIV, and HIV viral load and presence of antiretroviral therapy (ART) for those who were HIV-positive.
Wave 1 through Wave 3 of HAALSA Indepth (HAALSI) survey data, as well as Wave 1 of the HAALSA Indepth Dementia sub-study (HAALSI HCAP), is now available through:
Harvard Dataverse: The Harvard Dataverse Network, housed at the Institute for Quantitative Social Science (IQSS) at Harvard, hosts the world's largest collection of social science research. Dataverse is an open source web application to share, preserve, cite, explore, and analyze research data. Please see window to Dataverse below.
ICPSR: The Inter-university Consortium for Political and Social Research is a non-profit membership-based data archive based at University of Michigan that maintains and provides access to a vast archive of social science data. HAALSA will be part of The National Archive of Computerized Data on Aging (NACDA), located within ICPSR and funded by the National Institute on Aging.
INDEPTH Data Repository: This repository contains data collected by Network centers, making well-documented, anonymized, longitudinal microdata from Network centers available to data users.