The initial 3-year grant period of the HAALSI study was completed in 2017, with the establishment of a community-based cohort of 5,059 men and women ≥40 years of age in the INDEPTH community of Agincourt, South Africa. The response rate to the baseline survey was 86%. A second wave was completed in fall 2019, among 83% of the baseline respondents. Data collection for the third wave will begin in Spring 2021. Also in Spring 2021, we will collect data, via a telephone interview, on experiences during the COVID-19 pandemic among the HAALSI cohort, to better understand links between COVID-19 and cognitive function. Read the questions that make up this phone survey. During the Wave 3 data collection, we will perform serological assays to assess SARS-CoV-2 infection.
During the Wave 1 survey, all sampled individuals were visited at home from November 2014 to November 2015. In Wave 2, all sample individuals who were still alive were visited at home from November 2018 to November 2019. Trained, local fieldworkers collected survey data electronically using Computer Assisted Personal Interviews (CAPI). Extensive survey and laboratory data were collected to assess:
- Cognition & Dementia
- Cardiometabolic Disease
- HIV & Treatment
- Public Policies & Health
Surveys were conducted in the local language, Shangaan, with instruments translated from English and back-translated to ensure reliability. In addition to the survey, fieldworkers collected anthropometric measures and blood via finger prick for those who consented. Point of care blood tests were done for glucose, hemoglobin and lipids, and dried bloodspots were collected and later tested for HbA1c, CRP, HIV, and HIV viral load and presence of antiretroviral therapy (ART) for those who were HIV-positive.
The Wave 1 and Wave 2 survey data is now available through:
Harvard Dataverse: The Harvard Dataverse Network, housed at the Institute for Quantitative Social Science (IQSS) at Harvard, hosts the world's largest collection of social science research. Dataverse is an open source web application to share, preserve, cite, explore, and analyze research data. Please see window to Dataverse below.
ICPSR: The Inter-university Consortium for Political and Social Research is a non-profit membership-based data archive based at University of Michigan that maintains and provides access to a vast archive of social science data. HAALSI will be part of The National Archive of Computerized Data on Aging (NACDA), located within ICPSR and funded by the National Institute on Aging.
INDEPTH Data Repository: This repository contains data collected by Network centers, making well-documented, anonymized, longitudinal microdata from Network centers available to data users.